Oct 22
2015

Something That Scared Me

Today I did something that scared me. It was a giant leap out of my comfort zone. It was a bucket list item. Something I once said “Someday…”

But when I said “Someday,” what I was saying was really when I am a smaller size, when I am more this and more that. I didn’t think my body was “beautiful enough” I only saw flaws.
Fast forward to today when I realize my body is just perfectly imperfect. Not flawed, it’s beautiful. It’s the body of a mom in her mid 30s. A body that currently isn’t at its most toned or strongest shape as it has been in the past few years, but I’m still proud.
This leap from today I almost canceled. All week I’ve struggled greatly with so much on my plate, some major frustrations, some heartbreak, some depression, some hopelessness. I literally cried on and off all week.
But I scheduled this so long ago, I knew deep down if I canceled I’d only continue to put it off and chances were good I would never check it off my bucket list.
I walked in this morning still fighting the way I felt all week. Plus nerves. By the time I left today I felt like I was back to being *K* I needed a good self-confidence boost, I needed to do something that was solely for me, I needed to stop for a minute and look at my true beauty.
When my photographer showed me a few images on the back of her camera from time to time, I was blown away. What I saw was a woman who was beautiful and confident.
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 That was exactly what I needed to see.
Until Next Time~
*krisha*
Oct 14
2015

Not Today In This Mama’s Heart


This morning I woke up to my 4:30 a.m. alarm thankful for a new day. I got up & turned on my tunes, drank some coffee & got ready for my morning sweat session. I jumped on the treadmill & ran feeling alive & free; feeling as if the weight of life was off my shoulders. When I was done, I sat down with my personal development & read. In a 10 minute span, I only read 2 pages because I was so lost in the powerful words & thoughts I found my heart & soul lit on fire re-reading lines over & over again. 
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Eventually it was time for me to start the next part of my day; getting myself ready for another day & then awakening my girls. Yesterday was a rough day for my little Bear that included a breakdown on her part, which also led to mom’s heart shattering in pieces once again. This morning was an appointment with another specialist. My girl woke up remembering our first stop of the day was a doctor & instantly broke down. She has never been bothered or complained about going to doctor appointments…ever.
But, today you could see the anxiety weighing so heavy on her. The fear from the previous day still strong in her mind; the uncertainty of what might be said today & the terror of what we might have to try next not knowing how much discomfort it may cause her little body. We finally stopped for a moment as I hugged her & together we prayed.
We jumped in the car after her appointment this morning with her not really knowing what was said between the doctor & me. But, mom had a heavy heart where feelings of hopelessness were trying to fight their way in & tears filled my eyes.  She is a mystery; her body does not make sense. We have tried so many things that have worked for others & yet finding her right answer is still a large unanswered question. 
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I reminded her this morning that we had to stay brave, we had to stay open to new possibilities. No matter how many times we strike out, we have to strut back up to the plate & try again. If we are willing to keep trying, eventually, we will hit a home run. Who knows, maybe even a grand slam.

So those feelings of hopeless that are trying to break in this mama’s heart will have to wait. Today, I am too strong to let them in. I am so grateful I started my day working on me mentally, physically & emotionally so I could be ready to take care of my baby in the most positive way I could. Taking care of me, spending time on me, absolutely makes me a better mom today than I was yesterday. 
Until Next Time~
*krisha*
Sep 21
2015

Laughter Makes the Best….

…Weekend! 

I cannot tell you the last time I laughed this much! 

Like stomach muscles hurt!

This weekend kicked off with my bestie & I taking our older daughters out for a little date night picking up our 5k race packets & some homemade root beer and pizza. Oh boy, did we laugh! My daughter, Jacee & her best friend are too much fun together! Their friendship is refreshing to watch: there is no judgement, complete openness & comfort with each other! They are simply themselves, there is no pretending! Something that seems to be hard to come by much of the time!

Saturday morning, again with my bestie & her family, we ran the 5k for Breast Cancer! I stayed with my Jacee & it was such a joy! She did amazing running every step of the way! There is just something about crossing that finish line with your daughter….
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From there, we ran home to shower & pack before we ran back out the door so that I could attend a team meeting for my health + fitness business at  my upline’s home! I absolutely LOVE being around like-minded & passionate people! 

After that, my girls were off to stay the night with their best friends & my bestie, Roberta, & I headed out to Lansing for the half-marathon part of our weekend!

We ate food….a lot of food! 
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We walked across the road from our hotel to go sit & enjoy a pre-race drink! Of course, we made friends that were a riot to talk to!
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Then, we laughed for hours as we tried to fall asleep!! 

Finally, Sunday Race day arrived! After about 4 in the morning, I could not sleep. I was so incredibly nervous! I was not trained for this & can’t say I have even worked out as hard or as much in the past few months as I have in the past few years. It’s that adrenaline rush in the pit of your stomach…the same one I would get before pitching a big softball game! 
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The thing is….putting yourself at the start line is putting yourself out there with a good chance of failing. So many times since beginning running before I sign up for a race, I will honestly ask myself “but what if you fail & everyone knows?” Finally….I realize the only true failure is in not trying; its me not putting myself out there to fail & refusing to step outside of my comfort zone.

You stand there at the start line & although you are trying to pep talk yourself up; there are always doubts.

This was not my best race but it went better than what I had set myself up for! If I would take away my stop in McDonald’s (not for fries! But for the restroom – I didn’t have time to wait in line before the race started) at about miles 4-5 & me stealing half a roll of toilet paper to blow my nose (I NEVER forget kleenex – first time for everything!!) with for the next 5 miles thanks to the onset of my cold, along with some excruciating foot pain I might have pulled off a pretty decent time! Not to mention, although a beautiful course, it felt like I was going up & down constant hills! For real….not much flat ground! 

My bestie rocked the heck out of her run smashing her previous half-marathon time! I was like a proud mama!!! 

Such a great weekend! Being able to share in these race journeys with someone else makes it a million times better! We laughed so hard all weekend, challenged each other, pushed each other for what is next & enjoyed every mile! All 16.2 of them!
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 Until Next Time~
*krisha*


Sep 18
2015

At My Best?

A year ago….

I was in the best shape of my life.

I was getting ready to step my feet up to the starting line of an extremely difficult challenge.

A day that would change me.

A journey that already had changed me.

As I look back, part of me quickly points out that I am not the same person, almost as if I have gone backwards.

Physically, she is right….I am not at my best.

I cannot knock out a five mile easy run like it is nothing. I cannot hold a plank for minutes. I cannot squat a ridiculous amount of squats before I take a break. There are even clothes in my closet that I don’t like the way they fit right now.

But, on the other hand, I think I am at my best. Honestly, I am incredibly happy at this point in time.


At this time last year I had only been separated for a short time. I had endured daily struggles adjusting my life to what would become my new normal.

Since a year ago, I have traveled through divorce which is scary, emotional, stressful, depressing,….adjusting myself & my girls while learning to balance being single & keeping my girls’ needs as my number one. 

I have had many fights, sleepless nights, tears dealing with my daughter’s health: testing, trial & errors of different regimens, decisions on surgery, & now finding the right recipe for her regimen still so her nights can be pain-free.

There has been a lot of life, a lot of changes, in the past year. Yes, at times, my fitness has had to be pushed to the side a little here & there.

But, today I think I am at my best. In the past year I have learned so much about myself, grown so much. I have learned to truly love exactly the person I am, regardless of who loves me or who does not want to accept my imperfections. 

It is SO incredibly freeing to feel like this!!! 

I know that I am enough; I am me. I have changed my life & built my present & my future to be around those who do love me for the person I am, the ones that push me to be better, those who believe in me & my dreams. I will never forget the people who were there to support me whether it was during my adjustments to single, my daughter’s surgery time or my dream as a health + fitness coach.

I have followed a passion of mine that I have been dreaming about for years – becoming a health + fitness coach to help others, to encourage others. I want to help change lives, I want to help shape the future one person at a time. I was led to the exact right person at the exact perfect moment in time to take this leap of faith.

So, this weekend I will be running a half-marathon. Nope, I am not planning on a PR. I am not even planning on running every stride. I have not trained for this; although I tried time & time again – my biggest focus lately has been on my daughter & that has simply taken so much of my time but also my energy. Sure, I got in a few miles here & there but not what I intended. I can say that I am proud that I haven’t quit; I haven’t given up.

But, this weekend is not about the medal or the finish time. First, it is about my buddy, Kingsley, who is my coach & I am his running legs. Secondly, it is about running & being with my bestie who has been such a rock for me in the past year. Without her, I don’t know where I would be today. Third, its for my girls, like always. They are proud of mom & her running & I truly believe that it is showing them a wonderful example.

Last, but not least, this weekend is about the journey in the past year. A journey, truly, of a thousand miles. My past has had many dark moments, but my present is glowing with such a bright light. There is no doubt in my mind that next year I will be ready for a full marathon again after a year filled with amazing love, endless laughter & incredible people to share every step with. 


Until Next Time~
*krisha*

Sep 3
2015

This Would Not Have Been the Outcome

Tonight was a night that once never would have happened.

A night where once the outcome would have been different.

A picture like this would have never been taken or shared:

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My laundry basket that was supposed to be tackled sits untouched in the background.

My kitchen sink got left like this:
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However, I was supposed to be in dream land by 10:30 & here I sit awake & writing.

This was a night where our routine did not go well. My little Bear ended up a mess from her nighttime routine. It was a night of awful pain from her cramps to loud screams and big tears that led to her getting sick. It was a very intense two hours. All three of us girls ended with tears.

Sheer exhaustion hit us all by the end. My plan of getting a load of laundry done never happened. My kitchen didn’t get cleaned like normal. My ab workout I had intended to do was left undone.

Once both my girls drifted off to sleep, I grabbed my yoga mat. I needed to unwind, to settle, to stop & take a deep breath in the moment.

There was a time where I would have turned elsewhere. I would have poured a glass of wine…and chances are a second glass. There was a time I would have gone to the kitchen & shoved whatever I could find in my mouth at a ridiculous fast pace with really zero idea of what I consumed.

As I allowed my body to stretch & relax, I found myself lost in a moment of self-pride. Proud that I was allowing myself to not be perfect & letting the laundry & dishes to stay untouched for tonight. Proud that I turned to a healthy activity versus trying to de-stress via ways that were not ever going to provide my any true comfort (Don’t get me wrong here….there are nights still where I will be pouring myself a glass of wine & will enjoy it very much!! But because I want it & not for comfort).

I’m growing daily to love the imperfect me. The me that doesn’t have to finish her to do list. The mom that isn’t afraid to allow the day’s events to lead her to tears. The woman that loves & respects her body & treats it that way.

There was day I would have been ashamed to admit most of this. But, I have promised myself to show the real me; never fake & not simply the highlight reel of my life.

Tonight, I had tears, I was stressed, I felt defeated. But, the changes in me I saw at the end of the night is allowing me to lay my head on my pillow now feeling & believing that “it will get better.”

Until Next Time~
*krisha* 

Aug 28
2015

The Adventures of Bear & a New Passion!

Thank you so much to all of you who have been praying for my little Bear! Today I am feeling relieved, excited…but I will admit a little stressed & overwhelmed adjusting the three of us to our new lifestyle. 

 
Truly, I am so excited for her. No, she isn’t “fixed” but we have been given a better lifestyle for her. A chance for her to go through her days without fear of having an accident, carrying her extra clothes everywhere she goes, struggling with her self-confidence, and some days just simply scared. Literally, it feels like we have been stuck in potty training hell for four years.
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Yes, she could NOT wait to get outside the hospital yesterday now that the external tube was gone & do a cartwheel!
 
As her mom, I am so excited for her to take off to her first day of second grade & feeling even more at peace! I used to worry all day long about her; was scared for her. I used to be afraid to put her on the school bus in the mornings, I was afraid of field trips & not being there with her. I would sit there on the edge of my seat with my fingers crossed during gymnastics or basketball games! 
 
We see this as an improved lifestyle for us. This gives us a better way to put her body on a set schedule & to force her colon to work on our schedule. 
 
Don’t get me wrong, this will not be easy. We will do her flush every evening & we are not sure yet how long it will take us but easily an hour & a half. We are sort of back in a trial & error point now that we are down to once a day. There will be activities we have to leave early from, friend sleepovers that might be difficult, and times we just cannot join in some fun.
 
Now, the hard part for mom is making it all work! I work full-time; by the time I leave work & pick up my girls & walk into our home it is at the very earliest 5:30. She is supposed to eat dinner & have at least a couple of hours before her routine & it is supposed to be done about the same time every day. 
 
Hmm….yup! This will not be an easy transition for this mama on her own! To add to the fun, I confirmed yesterday after my own personal observations the past few weeks that processed crap causes her to cramp greatly during – like screaming & to the point of tears. It makes sense – our bodies are not made to process chemicals & when we are literally forcing her body to break down the foods as quickly as we do, I can imagine the struggles it endures. I have really limited the processed foods at my house already, but I know I have work to do!
 
Because the health of my girls is my number one always, be ready for this mom’s new passion which will be cutting down & out processed foods & packing healthy lunches for all three of us. Followed up with dinners via the crock pot on several nights or easy & quick meals!
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I have always worried about Laynee’s body getting all the nutrients it needs since we have to force her body to process them the way we do. She has not grown in the past 2 years much at all & has not gained weight but we have also seen her weight crazy all over the place with losing some so fast at times. At this point, her pediatrician & I discussed that we have put her body through a lot in the past two years so for now, we will watch & see if she progresses. But, I know I can do my part to make sure her body is getting the good stuff! 
 
A new direction, an even bigger passion, for my healthy lifestyle! This 100% will not be easy for me. I have never been good at planning meals out for the week – ever. But, life has given me no option. To make our school year flow & function in a smooth & healthy way I have to make changes. I have to dive in! 
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By the way….ever wonder why I call her Bear?? Two years ago, her kindergarten year, she was a total mess in the mornings & I swear she growled like a bear!!! Every day. It was horrible. Days I wanted to pour a glass of wine before 7 in the morning! So, I began calling her a bear. Well, towards the end of the school year we discovered she had sleep apnea after a sleep study! Hmm…that explains it – she was not receiving quality sleep! She got her tonsils & adenoids out & things got better. But…. she will always be my Bear!
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Until Next Time~
*krisha*
 

 

Aug 23
2015

What To Call It….Re-something

I am not sure if I shall say I am re-directing…

Re-defining?
Re-arranging?
Life does not seem to have a flow lately. Life does not seem to revolve around a clock, or the schedule in my mind I might draw up.
Time flies by and a million things each day do not get touched & our lives here revolve around the schedule of one.
We are in a state of adjustment with Laynee’s new routine, still. But, we are making the changes. She is nothing short of amazing….even when having to leave a birthday party this weekend to come home for at least an hour for her nighttime routine & then returning. Yes, I did get an “ugh, I don’t want to.” But, she vented her frustration for a second was all, & then in stride said “let’s get it done.”
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It has been a long chunk of time daily & this mom has had to change up her routines, schedules, plans for the day. This week is the week we go back to Columbus to have the external tube removed & we will be able to begin her routine just in the evenings instead of twice a day. This will change our evenings greatly headed into the school year soon. A job I’m already focusing on tackling & evaluating the changes we will make to ensure I am doing the best I can for her!
I have had to do a lot of stop & breathe moments lately. I’m an “on the go” kinda girl & planning anything is difficult right now. I have had several moments where I have to sit right next to her & hold her hand during heavy cramping for an hour & forget about my laundry or the dishes in the sink. This gets followed by a state of exhaustion where I decide I will hit the de-wrinkle button on the dryer in the morning & the dishes in the sink will get washed later. This is completely not my nature! 
Many times I have sat down & allowed excuses to creep in on life. I hate excuses; truly. So, I have down some digging, some praying, some writing, some something….making sure excuses are not controlling me or my life! I am human; I have days where I just want to be lazy & do nothing.
I have had to do some re-defining of my fitness & health goals & plans. You see when I first started my journey it was about a number. A number that I allowed to have control over me. Now, I continue because I feel good. Simple as that. I am a happier person when I take care of me.
A re-direction. Yes, a couple of months ago I had decided I was going to train for a full marathon again for this fall. I have been fighting with this. I love being in training for something! It takes my workouts to a whole new level for me, it allows me to fuel that super competitive side that I was born with in a way nothing else does.
But, I have had to be honest with myself. At first, I thought it was excuses I was allowing. But, I don’t think it is. I think as hard as it is for me to say “not this year” I think it is the only thing I can say. Training for a marathon takes so much out of you physically, mentally but even emotionally. I simply don’t have enough in me to give to it. There is not enough of “me” to go around right now.
I am easily at least three weeks behind the training schedule. After my injury from training & running the full last fall, I do not want to travel that road again. My body is not ready. I am not in the proper shape to accomplish the time goal I want for my next 26.2!
But, I love training! It makes me feel like *k* so I have been searching for the answer. I truly do love the half-marathon distance. So, I have set a new goal of trying to run at least three half-marathons in the next few months. In the big picture goal, the 26.2 goal is set for 2016 achieving the time goal I want as I spend the year preparing, training, building strength & speed to tackle it then.
This is a do-able goal for me. A goal that will keep this mama working towards her goals & ensuring she is taking care of herself as there is no one else to do that. But, this will also allow me to keep my focus on our new normal here in our home & adjusting us back into another school year smoothly.
So, today I pull out my planner & draw up my plan to accomplish my goal. If I don’t have a plan, it is only a dream, not a goal!
While I am in a mode of changes & re-defining, re-direction, re-arranging….
I am continuing on my quest of my “why.” So many chicken scratches are written here….why?
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Stay tuned to this week as I try to define my new why as the last one I did was when I still wore a ring on my finger. Yes, life is a roller coaster ride & sometime we cannot see what it coming once we reach the top of the hill….
But, it is a beautiful ride & we must enjoy the ride.
Until Next Time~
*krisha*
Aug 19
2015

Mistakes

Ever make one?

I have.

Pretty sure I make them daily.

Okay, not sure….positive.

In the last year I have truly stripped myself down to the core.

I have questioned myself, I have dug deep, I have pushed myself over the edge.

I have taken deep looks at the most inner layer of myself…you know the layer most people want to ignore & pretend it doesn’t exist.

I had to accept my responsibility in my failings. 

I had to look hard to find the reasons why things failed; what I did wrong instead of ignoring my faults & not accepting any blame.

I did some things very wrong; I made mistakes. I even would say I damaged some bridges I never meant to.

But, I was on a quest; a woman who had been so alone, so unloved, so unaccepted for so long that I did not even know who I was or who truly cared about me anymore.

I was living in a dark place screaming at the top of my lungs for help, for love, for someone to grab my hand.

In my yelling, I pushed some people away who maybe were there & I misunderstood them. 

In my journey in the last year going from married to separated to divorced & then back in the world of dating all while finding the real *krisha* again there have been an endless amount of lessons.

Lessons that I will be beginning to share on here. 
 
For starters, my biggest one:
 
Accept your journey & understand that others will not understand it or might judge you on it but its your journey, your life….only you know what has happened. Only you can change your direction. Your happiness matters & trust that you deserve a beautiful life.
 
So, yes, I was part of a failed marriage. I have made mistakes. I have done things I wish I could change.
 
Some choices I will always stand by & know they were the absolute best for my future no matter how hard they were to make or life-changing they might have been.
 
This is my journey; I am learning & I am growing daily. I admit to my failures, my imperfections, my short-comings. But I will also admit to my positives, my successes: I’m passionate about the people in  my life & about my activities, I always give more than 100%, I so completely love to help other people, I’m hard working, and I love hard & give big. 
 
My mistakes do not define me. I will make more mistakes as I travel. But, if I am willing to admit to them, to accept them as my mistakes they can only help guide me down the road. I am more than just my mistakes & I fully believe my future is going to be filled with all of the best things life has to offer. 
 
My dark days are over; my smiles are real. I am who I am, mistakes & all. 
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Until Next Time~
*krisha*
 

 

 

Aug 9
2015

The Glimmer

I sit here with my notebook where I write random thoughts, words, or memories. 

So much reflection going on inside this mind of mine.



We didn’t get to church today; just was not in our cards this morning for Laynee, so I sit here instead deep in my own thoughts & prayers.

I cannot tell you the number of times I have found tears in my eyes since returning back home this week from our surgery trip.

Happy tears.
Grateful tears.
Amazed tears.

I came home to a house that my mom had arranged and paid for to be completely clean for this full-time working mom that is on her own. The carpets were even cleaned. Although I had done extra cleaning up before leaving so I did not have to walk into a mess, walking into a house that was totally & completely clean was incredible. My mom also did some other random jobs around here for me. She has the most giving heart I have ever known.

My daughter arrived home to another fun “get well” gift bag on the front porch & fun “welcome home” signs hanging on the garage from her sister & cousin. The next two days, Laynee received flowers to the house & so many more cards in the mail. I came home to my favorite hard cider sitting in my fridge…..which I immediately poured myself a glass.

In the days since, I have received so many more messages from those praying for us or had been thinking about us. I still get daily texts from family & friends checking in to see how things are progressing.

The other night I was treated to a “spoil mom night.” My girls got a bubble bath ready complete with wine & music while dinner was being made. I sat there with tears & the biggest smile on my face & a heart that was simply busting with love.

For the past year, I had been traveling through a storm. There were many dark, scary days. Days where I felt the rain may never quit. Days I wondered if the lightning would strike & knock me down to the ground. Days where the wind was so strong, I could only go backwards.

There were times I reminded myself that sometimes you have to travel through a storm, you have to fight & stand strong. After the storm ends, the sun comes back out & if you are lucky, you might find a rainbow.

This weekend I have just been full of true joy. My girls are healthy (yes, Laynee has her “issues” but in general she is a healthy seven year old girl). I have some truly amazing people by my side that really just love me for me; the real me. We have so much love in our home; in our world. 

Today I can say that right now….in this moment…

I am so truly happy; the sun shines all day & even when it does get dark, I can always find just a small little glimmer of light reminding me that the storm will end & that no matter what, the sun will be back.

So, today I want to say thank you for being a blessing in my life! Always, always, look for the light no matter how small of a glimmer.

Until Next Time~
*krisha*

 

Aug 6
2015

Home Sweet Home.

Home Sweet Home.

After ten days of pretty much zero sleep for this mama, I am currently in my very own bed! Not to mention how amazing it felt to squeeze my Jacee!!!

To not say we have been on a roller coaster ride would be anything short of a lie. As most recovery cases are. Her little body likes to throw curve balls often, right at the moment you think you might hit it out of the park!

After her surgery when the surgeon told us they removed a foot of her colon and that it was coiled up like a snake inside her, I almost felt a sense of relief. For years I have known there was more to it when I was told she was withholding or that it was just this or that or just her not listening to her body. To know that having this surgery was needed and to know all this time there was a real reason gave me a deep sigh of relief that I wasn’t crazy.
 
Today, during my last conversation with one of the surgeons, I learned her case of her colon & what it was doing puts her in the top 1-2% of worst cases. Didn’t I tell you all last week that my bear believes it “Go big or go home.” She never takes the easy way or the normal way!

With this sweet little girl I never know what each day may bring. We had many times of struggles there but times of laughter too. Times I had to really call on my strength when all I wanted to do was cry. I found myself praying through a lot of moments: times of fear, times of weakness, time of loneliness.

Monday we did our first Malone flush together out of the hospital. They had been very painful previously and docs kept changing the recipe around. Right after we started, she began crying in pain. Horrible pain. An hour into it she began looking pale, started having extreme chills when she is always hot, and then began to vomit. I thought she was about to pass out. I immediately stopped the IV. She was crying and scared, I had already been fighting the tears for an hour as I just wanted to take away the hurt. I was so heartbroken, scared, alone, nervous.

I began to clean up and she saw I was crying and asked if I was. 
“Yes, I am Laynee. You have no idea how sad my heart is to see you like this. I wish I could take your place and take the hurt from you. But I can’t. All I can do is stay strong by your side. We can and will get through this but you can’t get weak on me now. We have to stay strong together and keep fighting and have faith it will get better.” 
She cried listening to me talk and as I went back to cleaning the bathroom, through her giant tears and sweet little voice she said:
“I’m so glad you’re my mommy.”
I lost it. Thank you God for blessing me with this sweet little girl who is so brave and courageous. One who keeps fighting and inspires me. I have been taught many lessons in patience with her and her body, which isn’t my strongest characteristic. I have been pushed out of my comfort zone with her. Been given the strength to know to keep fighting when you get all the wrong answers because mamas know best. To trust the doctors we have been led to and believe the timing was perfect. I have learned to never give up even when you reach many dead ends. 

Funny how we think as parents we are supposed to teach our children about life. But somehow they teach us. The lessons that come along for the ride with them change us. Their spirits, their smiles, their strength, their bravery, their constant love and their willing to believe. 

We still have some work to do. I am still working with her two doctors on the right recipe for her Malone. I understand now that her colon may never work on her own; she may always have to force it. But, this surgery is still a step forward for her. I felt so much more confident this morning after her team stopped by again & one of her docs went over so many different scenarios with me on what to do or change. Not to mention, that I was given an e-mail address that the top 2 docs of this program monitor & respond. So any questions or issues we may have, gets to be taken to the top dogs! Have I mentioned that one of the nurses told me that they now have all fifty states covered for patients traveling just for this incredible team & also a handful of different countries. They are so extremely passionate about what they do & for these kids to live normal lives or as close to normal as they can.
 
In the next four weeks, we will spend about three hours a day in the process of her daily medicine. When we return in four weeks, we get to drop it to once a day & split that time in half. No doubt that this will take some adjustment; getting used to our new normal.
 
However, can I tell you how amazing this child is?? She is so incredibly independent and hands on with her medical “stuff” and always has been. From the start of learning her Malone, I have made it a TEAM effort, not a mom effort. She is already hooking herself up on her own & wants to be involved in all the prep. For a few days, I felt her spirits were maybe down as she was learning her new normal & I know she had been self-conscious of the appearance of it for the next four weeks (not understanding that soon it won’t be visible) & was struggling as we made adjustments so to suddenly see her reaching out & wanting to be a part of the team made me so proud!
 
Together, with her amazing docs we will find the perfect recipe for her! The entire staff at Nationwide Children’s Hospital is amazing!!

As her mama, I will stay strong for her, be her biggest cheerleader, her best friend, her rock… In that moment the other night where she said those sweet little words to me is a moment I will always treasure.
 
So even on those days we might take a step backwards, we think it is a great day. No matter what, we are not at the beginning and we are not at a dead end. Progress is a blessing, no matter how big or small.

 

 

 

 

 

 

Until Next Time
*krisha*